Who We Are

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  • Who we are

    We are a 501(3)c charitable organization. We are a volunteer group of individuals committed to provide support, information, education and advocacy to individuals with PKU and other inborn errors of metabolism.
  • Where We Are

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  • Where we are

    We are located at:
    2310 Homestead Rd Suite C1, Box 154 Los Altos, CA 94024.

  • History

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  • History

    Established in 1981, we were known as PKU Parents of California. In 2005, we changed the name to the California Coalition for PKU and Allied Disorders in order to provide support to individuals with genetic IEM’s.
  • Our Mission

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  • Our Mission

    Our Mission is to provide support to all families living in California who are involved with or affected by PKU and/or Allied Disorders.

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  • Info

    Welcome

    to the California Coalition for PKU and Allied Disorders (CCPKUAD)
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    5

    August
    2017
    CCPKUAD hosted Family Day 2016 at The Painted Turtle and now we would like to share this great opportunity with you, where meals will meet your needs and activities will fill your days. Please note that this is not an official CCPKUAD weekend, but an opportunity we wanted to share since we had such an out standing time at Family Day 2016 at The Painted Turtle.

    Registration is now open for the PKU, MPS, Urea Cycle Disorder Family Weekend on November 17-19 at The Painted Turtle.  We hope you enjoy this family, fun filled weekend!

    Please see the flyer below and visit http://thepaintedturtle.org/campers-families/families/application/ for more information

     


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    CCPKUAD is a 501(3)c non-profit organization. We are a volunteer group of individuals committed to provide support, information, education and advocacy to individuals with PKU and other inborn errors of metabolism.
    We became an organization in 1981 formed by parents and our group was formerly known as PKU Parents of California.
    In 2005 we changed the name to the California Coalition for PKU and Allied Disorders in order to provide support for other individuals with genetic IEMs. After a 4 year period of inactivity, the current group of officers resurrected the group in an effort to bring together this community and provide a much needed organization in California.
    WE WANT TO HEAR FROM YOU! Please click on the icons below to send us an e-mail, follow us on Twitter, and "like" us on Facebook!

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