Who We Are

arrow PNG
  • Who we are

    We are a 501(3)c charitable organization. We are a volunteer group of individuals committed to provide support, information, education and advocacy to individuals with PKU and other inborn errors of metabolism.
  • Where We Are

    arrow PNG
  • Where we are

    We are located at:
    2310 Homestead Rd Suite C1, Box 154 Los Altos, CA 94024.

  • History

    arrow PNG
  • History

    Established in 1981, we were known as PKU Parents of California. In 2005, we changed the name to the California Coalition for PKU and Allied Disorders in order to provide support to individuals with genetic IEM’s.
  • Our Mission

    arrow PNG
  • Our Mission

    Our Mission is to provide support to all families living in California who are involved with or affected by PKU and/or Allied Disorders.

    (Click "info" to exit this screen)

  • Info

    Welcome

    to the California Coalition for PKU and Allied Disorders (CCPKUAD)
    teaser image

    24

    April
    2018

    WHY Come to the CCPKUAD Family Day and Fundraiser?

     

    School will be done so come join the fun!
    It’s never to late to educate yourself and others about PKU and Allied Disorders!

     

    Saturday, 6/16 10AM-2PM at Centennial Park

    14722 Devonshire Ave, Tustin, CA 92780

     

    California Coalition for PKU and Allied Disorders (CCPKUAD) invites YOU to join fellow PKU and Allied Disorder families for FREE lunch, various vendors, a raffle including an iPad, a speaker, new ideas and fun for all ages!

     

    Registration is REQUIRED as we have limited space per the city. Please register online at goo.gl/Wk5MhL or use mailing coupon below. Limit 3 family members per patient.

    Questions? Please email Diane at CCPKUAD@gmail.com We hope you can join us!

    ***************************************************************************************

    Please mail this coupon by June 2, 2018 to CCPKUAD 2310 Homestead Rd Suite C1 Box 154 Los Altos, CA 94024

     

    • Registration Name (First, Last)____________________________
    • Who in your family has PKU or allied disorder and what is their age(s)?
    • How many people in your family will attend family day? ______
    • Last name and first name of attendees, separated by a comma. (Please indicate who has PKU. ie Mary Smith, PKU etc.) ______________________________________________________
    • How many attending will be children? ______
    • How many LOW-PRO meals will you need? ______
    • Address_________________________________________________
    • City, State, Zip_________________________________
    • Phone/email___________________________________

    Leave a Reply

    Your email address will not be published. Required fields are marked *

    CCPKUAD is a 501(3)c non-profit organization. We are a volunteer group of individuals committed to provide support, information, education and advocacy to individuals with PKU and other inborn errors of metabolism.
    We became an organization in 1981 formed by parents and our group was formerly known as PKU Parents of California.
    In 2005 we changed the name to the California Coalition for PKU and Allied Disorders in order to provide support for other individuals with genetic IEMs. After a 4 year period of inactivity, the current group of officers resurrected the group in an effort to bring together this community and provide a much needed organization in California.
    WE WANT TO HEAR FROM YOU! Please click on the icons below to send us an e-mail, follow us on Twitter, and "like" us on Facebook!

    Add Us

    Email UsFacebookTwitter

    © 2010 CCPKUAD
    Theme: GC02 by GlossyCat