Who We Are

arrow PNG

  • Who we are

    We are a 501(3)c charitable organization. We are a volunteer group of individuals committed to provide support, information, education and advocacy to individuals with PKU and other inborn errors of metabolism.

    • Where We Are

    arrow PNG

  • Where we are

    We are located at:
    2310 Homestead Rd Suite C1, Box 154 Los Altos, CA 94024.

    • History

    arrow PNG

  • History

    Established in 1981, we were known as PKU Parents of California. In 2005, we changed the name to the California Coalition for PKU and Allied Disorders in order to provide support to individuals with genetic IEM’s.

    • Our Mission

    arrow PNG

  • Our Mission

    Our Mission is to provide support to all families living in California who are involved with or affected by PKU and/or Allied Disorders.

    (Click "info" to exit this screen)

    • Info

    Welcome

    to the California Coalition for PKU and Allied Disorders (CCPKUAD)
    teaser image

    Advocacy

    Home | Donate | Events

    Watch this video and learn about PKU and how you can help.



    If you, or a friend or loved one, are having problems with obtaining coverage, medical food products or any other matters related to your medical treatment, join our group to become advocates.

    We support the National PKU Alliance and are active in providing support for current medical issues regarding coverage. There is power in numbers! Parents, families and friends provide a huge voice!

    Help your friends understand PKU and the importance of medical food coverage. Read this article and share.
     

    Support our work

    PKU Information Center

    Become a member

    It’s simple!

    Show your support by becoming an official CCPKUAD member! CLICK HERE TO SIGN UP FOR MEMBERSHIP!
     It's only $5 annually!

    CCPKUAD is a 501(3)c non-profit organization. We are a volunteer group of individuals committed to provide support, information, education and advocacy to individuals with PKU and other inborn errors of metabolism.
    We became an organization in 1981 formed by parents and our group was formerly known as PKU Parents of California.
    In 2005 we changed the name to the California Coalition for PKU and Allied Disorders in order to provide support for other individuals with genetic IEMs. After a 4 year period of inactivity, the current group of officers resurrected the group in an effort to bring together this community and provide a much needed organization in California.
    WE WANT TO HEAR FROM YOU! Please click on the icons below to send us an e-mail, follow us on Twitter, and "like" us on Facebook!

    Add Us

    Email UsFacebookTwitter

    © 2010 CCPKUAD
    Theme: GC02 by GlossyCat