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CCPKUAD is a 501(3)c non-profit organization. We are a volunteer group of individuals committed to provide support, information, education and advocacy to individuals with PKU and other inborn errors of metabolism. We became an organization in 1981 formed by parents and our group was formerly known as PKU Parents of California. In 2005 we changed the name to the California Coalition for PKU and Allied Disorders in order to provide support for other individuals with genetic IEMs. After a 4 year period of inactivity, the current group of officers resurrected the group in an effort to bring together this community and provide a much needed organization in California. WE WANT TO HEAR FROM YOU! Please click on the icons below to send us an e-mail, follow us on Instagram, and “like” us on Facebook!

Board members:

Victoria Kelly, President


Bryce Paolella, Vice President


Margaret Robinson Knight, Secretary


Alex Klimowski, Treasurer


John Pytel, NPKUA liason


Kathryn Moseley, MS RD, Medical Community Liason



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