Who We Are

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  • Who we are

    We are a 501(3)c charitable organization. We are a volunteer group of individuals committed to provide support, information, education and advocacy to individuals with PKU and other inborn errors of metabolism.
  • Where We Are

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  • Where we are

    We are located at:
    5942 Edinger Ave., Suite 113, PMB 191, Huntington Beach, California, 92649

  • History

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  • History

    Established in 1981, we were known as PKU Parents of California. In 2005, we changed the name to the California Coalition for PKU and Allied Disorders in order to provide support to individuals with genetic IEM’s.
  • Our Mission

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  • Our Mission

    Our Mission is to provide support to all families living in California who are involved with or affected by PKU and/or Allied Disorders.


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  • Info

    Welcome

    to the California Coalition for PKU and Allied Disorders (CCPKUAD)
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    22

    April
    2016

    Last year CCPKUAD raised $500 in 30 hours to support PKU research. How much more will we raise this year with YOUR help!

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    April
    2016

    Click here to register for CCPKUAD’s

    Annual Family Day at The Painted Turtle!

     

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    February
    2016

    Stay tuned for more information on this year’s Bubble Run and Family Day!

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    February
    2016

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    July
    2015

    Looking to expand your recipe collection or need tips on low-pro recipes? Join us on Aug. 8 in Seal Beach. For more information and to register, please visit: http://www.pku.com/event-registration/343/

    23

    April
    2015

    Thanks to you and your generosity

    we raised $500 in 30 hours for CCPKUAD!

    THANK YOU!

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    28

    March
    2015

    Connect with us now to keep up with the latest from CCPKAD:

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    March
    2015

     

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    Visit these great websites where you can donate to CCPKUAD to help us reach new heights.

    CCPKUAD–click on the DONATE button on the right side

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    OC Connect

     

     

     

    CCPKUAD is a 501(3)c non-profit organization. We are a volunteer group of individuals committed to provide support, information, education and advocacy to individuals with PKU and other inborn errors of metabolism.
    We became an organization in 1981 formed by parents and our group was formerly known as PKU Parents of California.
    In 2005 we changed the name to the California Coalition for PKU and Allied Disorders in order to provide support for other individuals with genetic IEMs. After a 4 year period of inactivity, the current group of officers resurrected the group in an effort to bring together this community and provide a much needed organization in California.
    WE WANT TO HEAR FROM YOU! Please click on the icons below to send us an e-mail, follow us on Twitter, and "like" us on Facebook!

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