Who We Are

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  • Who we are

    We are a 501(3)c charitable organization. We are a volunteer group of individuals committed to provide support, information, education and advocacy to individuals with PKU and other inborn errors of metabolism.

    • Where We Are

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  • Where we are

    We are located at:
    5942 Edinger Ave., Suite 113, PMB 191, Huntington Beach, California, 92649

    • History

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  • History

    Established in 1981, we were known as PKU Parents of California. In 2005, we changed the name to the California Coalition for PKU and Allied Disorders in order to provide support to individuals with genetic IEM’s.

    • Our Mission

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  • Our Mission

    Our Mission is to provide support to all families living in California who are involved with or affected by PKU and/or Allied Disorders.


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    • Info

    Welcome

    to the California Coalition for PKU and Allied Disorders (CCPKUAD)
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    2011 Family Day!

    17

    October
    2011
    by CCPKUAD in PKU DAY | Reply
    2


    UPDATE: Our second annual PKU Family Day was even better than last year!

    Our CCPKUAD members, friends and family enjoyed the good food, relay races, games and raffles, prizes, and much more!

    This year, we had a low-protein cooking contest with prizes for either best presentation, best taste, and most creative! Representatives from Nutricia, VitaFlo, BioMarin and Cambrooke Foods were providing low-protein samples and lots of goodies. A big thanks to Malathy from Taste Connections for providing the low protein lunch. Applied Nutrition also had a table with sample products and giveaways! We had tons of games, crafts, and non-pku dishes provided by Chic-fil-A! A special thanks to our vendors who made it all happen…and congrats to all our prize and raffle winners! Can’t wait to see you all again next year

    Upcoming Events!

    -Save the Date for our next Family Day Saturday, August 11, 2012! Details to follow.


    -Enter to win a free trip to the National PKU Alliance 2012 Conference! Click here


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    CCPKUAD is a 501(3)c non-profit organization. We are a volunteer group of individuals committed to provide support, information, education and advocacy to individuals with PKU and other inborn errors of metabolism.
    We became an organization in 1981 formed by parents and our group was formerly known as PKU Parents of California.
    In 2005 we changed the name to the California Coalition for PKU and Allied Disorders in order to provide support for other individuals with genetic IEMs. After a 4 year period of inactivity, the current group of officers resurrected the group in an effort to bring together this community and provide a much needed organization in California.
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