Don’t forget to register for Family Day! 

The registration link can be found on our website linked in our bio.
Registration for both SoCal and NorCal family day events close on May 24th
We would also like to take this opportunity to thank our amazing sponsors for our 2024 Family Day events.
Thanks to our Golden Gate Sponsors, BioMarin Pharmaceutical and Ajinomoto Cambrooke, as well as our Beach Front Sponsor, ZOIA Pharma and our Redwood Sponsor, PTC Therapeutics.
Their support allows us host these incredible events, and helps us grow and connect with our community through education, clinical support, and advocacy. 
Thank you to all who continue to support CCPKUAD!
We are getting very excited that our SoCal Family Day event is just 1 month away!
Can’t wait to see you all there!


Time to register for the 2024 CCPKUAD annual family day

We are excited to announce the CCPKUAD family day, 2024!

We will host two separated events in South and North California. Feel free to bring your family, enjoy lunch and family activity with us.

There will be food for both PKU patients and non-PKU attendees served. You will have chance to talk with other families, health care providers, as well as our sponsors and vendors that are serving PKU communities.

If you are interested, register HERE by May 24, 2024

South CaliforniaNorth California
San Dimas Park, picnic area 5Los Altos Community Center
1628 Sycamore Rd, San Dima, CA 9177397 Hillview Ave, Los Altos, CA 94022
Event information

If you can’t remember if you’ve already registered, please send us an email at and we’ll check.

New logo!

The California Coalition for PKU and Allied disorders is proud to debut our new logo!

This icon represents an identity that aims to unite families and individuals who deal with PKU and other allied disorders daily, helping to promote strength, community, family, and heart.

The DNA double helix crosses and unites to symbolize structure and togetherness. The form creates the shape of a heart, doubling as two perceived individuals embracing, one larger than the other. This perception could be seen as a mother or father to their son or daughter or a friend at school embracing someone new. The coalition icon will be a symbol that members can feel proud to wear, knowing it represents the community that aims to help educate, support, and unite those within it.

Thank you all for your continued support and engagement. We hope you share our excitement about this new identity of CCPKUAD. We’re looking forward to strengthening our community, sharing many more family days and other events with you all, and inspiring the hearts and minds of all people who are a part of this great coalition.





SATURDAY, June 15, 2019

10:30 am – 2:00 pm

Foothill College Dining Room
12345 El Monte Rd
Los Altos Hills, CA

Bring your friends and family! Come enjoy the fun, vendors, face painting, an educational speaker, food, iPad raffle, arts and crafts for the kids, free takeaway for each family and more! (But you must register!)

FREE Regular and low protein lunch will be served!

Please bring any unloved unopened low protein food for our Food Swap table!

**NEW: If your PKU/Allied Disorder patient would like to display any artwork, please email Diane for details (

Register online at OR by using coupon below

*YOU MUST PRE-REGISTER: Please mail response to:

CCPKUAD 2310 Homestead Rd
Suite C1 Box 154
Los Altos, CA 94024

Event registration begins April 1, 2019! Questions?
Contact Diane at