Who We Are

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  • Who we are

    We are a 501(3)c charitable organization. We are a volunteer group of individuals committed to provide support, information, education and advocacy to individuals with PKU and other inborn errors of metabolism.

    • Where We Are

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  • Where we are

    We are located at:
    2310 Homestead Rd Suite C1, Box 154 Los Altos, CA 94024.

    • History

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  • History

    Established in 1981, we were known as PKU Parents of California. In 2005, we changed the name to the California Coalition for PKU and Allied Disorders in order to provide support to individuals with genetic IEM’s.

    • Our Mission

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  • Our Mission

    Our Mission is to provide support to all families living in California who are involved with or affected by PKU and/or Allied Disorders.

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    • Info

    Welcome

    to the California Coalition for PKU and Allied Disorders (CCPKUAD)
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    Medical Foods Equity Act

    1

    March
    2020
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    Friends of CCPKUAD, please see the attached Instagram picture from howmuchphe.

    Support the Medical Foods Equity Act by going to NutritionEquity.org and taking action! If you are on Instagram, consider following howmuchphe!

    Online PKU research opportunity for PKU parents!

    11

    November
    2019
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    To learn about exciting research please see the flyer below and click SURVEY below to participate!

    SURVEY

    THE 11th ANNUAL CCPKUAD FAMILY DAY PICNIC, FUNDRAISER AND MEMBERSHIP DRIVE!

    1

    April
    2019
    by in Events | Reply
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    THE 11th ANNUAL CCPKUAD FAMILY DAY PICNIC, FUNDRAISER AND MEMBERSHIP DRIVE!

    SATURDAY, June 15, 2019

    10:30 am – 2:00 pm

    Foothill College Dining Room
    12345 El Monte Rd
    Los Altos Hills, CA

    Bring your friends and family! Come enjoy the fun, vendors, face painting, an educational speaker, food, iPad raffle, arts and crafts for the kids, free takeaway for each family and more! (But you must register!)

    FREE Regular and low protein lunch will be served!

    Please bring any unloved unopened low protein food for our Food Swap table!

    **NEW: If your PKU/Allied Disorder patient would like to display any artwork, please email Diane for details (CCPKUAD@gmail.com)

    Register online at https://forms.gle/ZPmUqQoRavq2SQLn9 OR by using coupon below

    *YOU MUST PRE-REGISTER: Please mail response to:

    CCPKUAD 2310 Homestead Rd
    Suite C1 Box 154
    Los Altos, CA 94024

    Event registration begins April 1, 2019! Questions?
    Contact Diane at CCPKUAD@gmail.com

    Support our work

    PKU Information Center

    Become a member

    It’s simple!

    Show your support by becoming an official CCPKUAD member! CLICK HERE TO SIGN UP FOR MEMBERSHIP!
     It's only $5 annually!

    CCPKUAD is a 501(3)c non-profit organization. We are a volunteer group of individuals committed to provide support, information, education and advocacy to individuals with PKU and other inborn errors of metabolism.
    We became an organization in 1981 formed by parents and our group was formerly known as PKU Parents of California.
    In 2005 we changed the name to the California Coalition for PKU and Allied Disorders in order to provide support for other individuals with genetic IEMs. After a 4 year period of inactivity, the current group of officers resurrected the group in an effort to bring together this community and provide a much needed organization in California.
    WE WANT TO HEAR FROM YOU! Please click on the icons below to send us an e-mail, follow us on Twitter, and "like" us on Facebook!

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