Category: Family DAY

Don’t forget to register for Family Day! 

pkucoalition

The registration link can be found on our website linked in our bio.
Registration for both SoCal and NorCal family day events close on May 24th
We would also like to take this opportunity to thank our amazing sponsors for our 2024 Family Day events.
Thanks to our Golden Gate Sponsors, BioMarin Pharmaceutical and Ajinomoto Cambrooke, as well as our Beach Front Sponsor, ZOIA Pharma and our Redwood Sponsor, PTC Therapeutics.
Their support allows us host these incredible events, and helps us grow and connect with our community through education, clinical support, and advocacy. 
Thank you to all who continue to support CCPKUAD!
We are getting very excited that our SoCal Family Day event is just 1 month away!
Can’t wait to see you all there!

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Time to register for the 2024 CCPKUAD annual family day

pkucoalition

We are excited to announce the CCPKUAD family day, 2024!

We will host two separated events in South and North California. Feel free to bring your family, enjoy lunch and family activity with us.

There will be food for both PKU patients and non-PKU attendees served. You will have chance to talk with other families, health care providers, as well as our sponsors and vendors that are serving PKU communities.

If you are interested, register HERE by May 24, 2024

South CaliforniaNorth California
06/08/202406/22/2024
San Dimas Park, picnic area 5Los Altos Community Center
1628 Sycamore Rd, San Dima, CA 9177397 Hillview Ave, Los Altos, CA 94022
Event information

If you can’t remember if you’ve already registered, please send us an email at ccpkuad@gmail.com and we’ll check.

CCPKUAD Family Days 2023

CCPKUAD

As you hopefully remember, we are once again holding two CCPKUAD FamilyDays this summer – one in Southern California on June 10 and one in Northern California on June 24. Registration is still open, but will close June 1. There is no cost, but space may be limited so register now!

Here’s an update on the events:

  • So far, we have the following sponsors confirmed: Ajinomoto Cambrooke, BioMarin, Codexis, Nexus Patient Services, PKU Perspectives, Relief Therapeutics, Synlogic (Thank You!)
  • For the Northern California event, we will once again have a (free to attendees) Dole Whip machine
  • For the Southern California event, we will once again have a (free to attendees) Fruit Cart Vendor. We also have 3 Bocce courts adjacent to our picnic area reserved.
  • Both events will feature a 30-45 minute program right before lunch.

If you can’t remember if you’ve already registered, please send us an email at ccpkuad@gmail.com and we’ll check.

See the flyer below for all the details, but for convenience, here is the registration link:
https://tinyurl.com/2undzz4y

We hope to see you in June!